Browsing articles tagged with " Rhombencephalosynapsis"
Nov
18
2014

Beer For Brains – Fundraiser Event

As a parent of a child with a rare hindbrain malformation (Rhombencephalosynapsis), we have been very fortunate to live near Seattle Children’sHospital and the University of Washington.When Spencer was diagnosed, we were informed there were approximately 50-100 reported cases worldwide, and here we were, just a short ride to the nearest location researching hindbrain malformations! Now it’s time to raise a pint for research, and to salute all the families that have been diagnosed with […]

Jun
2
2011

Baby Signing Time

If you haven’t heard of Baby Signing Time, you haven’t read many of my posts as I frequently reference them as my son is hooked! I purchased the first set of four of the Baby Signing Time videos for my son Spencer as we didn’t know what to expect after he was diagnosed with a rare brain malformation (Rhombencephalosynapsis). I swore I wasn’t going to let me son watch any television for the first few […]

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